Family Support

Below is a list of parent and family support resources that we are aware of for families of children and youth with special health care needs. Children’s Resource Center-North can help you navigate these resources and others by contacting us toll free at 1-866-640-4106 or using the Contact Us form on our website www.crcnorth.org. Our website also has this information, which makes it easy to connect to the websites listed.

Connecting Families– Waisman Center connectingfamilies.waisman.wisc.edu/, working on creating parent support group opportunities for the following populations:

Parent-to-Parent of Wisconsin p2pwi.org/  direct 1:1 parent/caregiver support over the phone. Parents are matched with other parents who have children with the same diagnosis or similar experiences.

Courageous Parent Network- Courageous Parents Network is a non-profit organization that orients and empowers parents and others caring for children with serious medical conditions, by providing resources and tools that reflect the experience and perspective of other families and clinicians.

DSAW Down Syndrome Association Wisconsin www.dsaw.org/

Epilepsy Foundation-Wisconsin www.epilepsywisconsin.org/groups has virtual and in-person groups in other parts of the state. Parent and Caregiver Connect Group takes place every third Thursday each month at 6:30 over Zoom.  To join, contact Alicia Gajewsky at

Autism Society of Greater Wisconsin  autismgreaterwi.org

Other Local Autism Support Groups

Courageous Parent Network- Courageous Parents Network is a non-profit organization that orients and empowers parents and others caring for children with serious medical conditions, by providing resources and tools that reflect the experience and perspective of other families and clinicians.

Hand to Hold (NICU Families) handtohold.org/

National Alliance on Mental Illness (NAMI)

  • NAMI Northern Lakes – Serves Forest, Oneida, and Vilas counties naminorthernlakes.org/ 715-420-1700
    • Raise Your Voice peer group at Rhinelander HS and LUHS
    • Family Support Group meets at Howard Young in Woodruff on the 1st Tuesday of the month (6:30-8), for individuals 18 and older who have a loved one experiencing mental health issues
  • NAMI Northwoods – Serves Marathon, Lincoln, and Langlade www.naminorthwoods.org/
    • Family Support Group meets at Grace United Church of Christ in Wausau on the 4th Monday of the month from 7-8p
    • Peer group for ages 18+ meets 2nd Monday and 4th Wednesday of the month at 5:30p at Grace United Church in Wausau
  • NAMI Portage & Wood www.namiportagewoodcounties.org/

Children’s Wisconsin Family Resource Centers and family programming  childrenswi.org/childrens-and-the-community/families-and-clients/parenting-resources/family-resource-centers

Relatives as Parents Program gwaar.org/grandparents-and-relative-caregivers Grandparents and other relatives who have taken on the role of surrogate parenting due to the absence of the parents can be served through NFCSP if the caregiver is a relative by blood, marriage, or adoption and are at least 55, primary caregiver, lives with the child, and the child is under 19 and/or has a disability

Sibshops Sibling support for children aged 5-12 who have a sibling with special health care needs. These are workshops that are usually offered one Saturday a month. In our region, Sibshops are offered at Marshfield Clinic-Marshfield www.marshfieldchildrens.org/child-life/child-life-services

UW Extension Parenting and Family Relationships parenting.extension.wisc.edu/ Triple P Programs, co-parenting groups

Wisconsin Family Connections Center offers virtual and in-person support for adoptive parents, foster parents, reunified families, kinship care, and adult adoptees

Ashland Family Support Summit

Free!

Saturday, September 17, 2022

9:30 AM – 2:30 PM

Northwood Technical College Conference Center, Ashland, WI (use parking lot on far south side and enter in  through door S4)

Sharing Circles– informal conversations throughout the day
• Practicing good Self-Care for parents
• What resources and tools are available to keep my child safe?
• How does my family access different services and supports?
• Parenting support/ raising grandchildren
• How do I best make use of therapy supports for my child?

Presentation Schedule
• 10:00 AM Build Your Bridge: Introduce and discuss when to start thinking about health care transition to adult care providers as well as offers helpful tools and resources.
• 11:30 AM Did You Know? Now You Know!: explains resources and services for children with disabilities and special health care needs from birth through young adulthood. Topics include: Medicaid, Children’s Long-Term Supports, prior authorizations and appealing a Medicaid denial, respite, partnering with your doctor, and more.
• 1:00 PM Caring for the Whole Family: Tips and guidance from parents for parents of children with special health care needs/disabilities

Other opportunities:
• Resource Tables and demonstration booths from local organizations
• Asset Mapping- share what assets are in your community and learn the gifts of your neighbors
• Build a Care Notebook: a way to organize school information, medical records, and other important information to share with others.
• Kids Activities: coloring pages, stickers, make your own fidget, and others activities

Help us plan by filling at this brief form- you do not need to RSVP to attend. 

Family Support Summit Ashland Flyer